The Patient-Centered Outcomes Research Institute (PCORI) today announced 82 new funding awards supporting patient-centered comparative clinical effective research. Among the recipients are former INQRI grantee Richard Mularski and INQRI National Advisory Committee member Elizabeth McGlynn.
Mularski's grant is for a project to establish a foundation that combines an education, advocacy and support group created by and for patients with Chronic Obstructive Pulmonary Disease (COPD) with two federally funded research networks. The COPD Patient-Powered Research Network will enroll 100,000 people with COPD in a registry to support patient-driven and patient-centered outcomes research.
McGlynn's grant will support a network of four leading health care delivery systems in collaborating with patients, clinicians, and operational leaders to a clinical data
research network.The Patient Outcomes Research To Advance Learning (PORTAL) network will create cohorts of: (1) patients with a diagnosis
of colorectal cancer; (2) adolescents and adults with severe congenital heart
disease (CHD); and (3) adults who are overweight or obese, including those who
have prediabetes or diabetes.Those cohorts will inform the PORTAL Network's efforts to advance the nation's ability to answer questions that are
important to patients about what works best for whom under what circumstances and increase opportunities to translate research findings back
into improvements in the delivery of health care.
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